Mar 29, 2015
Mar 23, 2015
Mar 21, 2015
Mar 14, 2015
Anna has been on my mind constantly these past few weeks. We think she may have another syndrome on top of her original diagnosis of Gorlin Syndrome, and we're waiting for her test results to come back. Any day now. (It's been 'any day now' for a week, which makes it frustrating.)
If she does have this new thing, I'll share more. (I've found that there's a fine line when you have a blog. How much should I share? Will my sharing help others? If the answer is yes, I try to share as much as possible with you.)
I've wanted to write more about my journey with Anna, but it just hasn't been the right time. I've written posts in my head for weeks, and then days later I'm so glad that I waited. I was just about to go to bed a few minutes ago, when God told me to write. So, here I am. I don't have much to share right now, but Welcome to Holland is a good place to start. This poem is well-known in the special needs community, although it obviously is applicable to pretty much every life situation where our expectations differ from our realities.
c1987 by Emily Perl Kingsley. All rights reserved
Welcome to Holland
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......